Saturday, June 14, 2008

Back to Square One

Well, after a week on the new medication (Prevacid), we only saw a worsening of symptoms in Nolan – no improvement. So, we are now switching back to the Prilosec. We will give it one more week on the old medication, combined with the chiropractic therapy…if we see no progress, then we will reluctantly move forward with scheduling the Upper GI. I don’t know what the results of that test will actually show us or how it will help us determine what to do, but it is the only way to truly “see inside” of him to view what’s going on.

We also had an appointment this week with the lactation nurse (again) and she was able to weigh him before and after a feeding. He had lost weight since the last time he was weighed. And, although it was only an ounce, it was hard for me. She also determined that because he hasn’t been eating well, despite all my efforts, my milk supply has decreased. So, I am now taking herbs to try and boost it back to the level where it needs to be for him right now. We will follow up with her again in another week to have him weighed and make sure that he has gained. If he hasn’t, that will also be an indicator that the Upper GI must be performed.

Every time we try something new, whether it be a medication or physical therapy or even a different feeding position, I keep hoping that this will be “it”…that this will be the thing that will cure him. I don’t know why I keep expecting a miraculous recovery when all the doctors have told us he will have this condition for a while. But, I keep hoping against hope that somehow he will wake up one morning pain-free. Until then, I am doing my best to stay positive and appreciate the good moments, however few and far between.


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